“ The doctor said, ‘You wouldn’t live through a major accident because you would bleed to death, and if you were lucky enough to live from the operation, you might die from infection’
The Times West Virginian - ‘I’m afraid not to exercise’
This article focuses on the role of exercise in cardiovascular health. They interviewed an EDS patient who had suffered a heart attack at 53, followed by a rupture during pacemaker installation. Though the writer (erroneously) underestimates the role of Ehlers Danlos in heart complications, EDS patients can read between the lines here. They don’t tell us we need regular echocardiograms for nothing.
