EDS NYC is a 501c3 organization dedicated to supporting those coping with Ehlers-Danlos Syndrome in the Metro New York City area. If you'd like more information, Email us.

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On a recent visit to her new spacious and cozy home, however, Mrs. Frisch’s words and laughter came fast and freely, showing no noticeable effects of Ehlers-Danlos Syndrome, the rare illness that weakens her body’s soft tissue and veins.

Firm Faith leads Frisch to pen book in face of grave illness

Jackie Frisch has EDS and was featured on Extreme Home Makeover a few months ago. Her book isn’t about Ehlers Danlos, but it she’s raising awareness by making it a part of the discussion whenever she can.