EDS NYC is a 501c3 organization dedicated to supporting those coping with Ehlers-Danlos Syndrome in the Metro New York City area. If you'd like more information, Email us.

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Useful Resources
EDNF
EDS Alert
EDS Today
EDS UK group
But You Don't Look Sick's EDS Forum
EDS Kids forum
EDS at the NIH
EDS at NORD


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Ehlers-Danlos syndrome: Take Your Time (via ufo8mykat)

Sama posts a lot of insightful videos about her experiences with EDS. Her most recent describes the tradeoffs that go along with making plans. Very relatable & highly recommended.